HNPP - Hereditary Neuropathy with liability to Pressure Palsies - is an inherited nerve disease which affects the peripheral motor (muscle) and sensory nerves. This website has been set up to share information and support for those who have been diagnosed with this disorder. This page will mostly contain links to other sources of information and to other support groups worldwide. There is also a forum to help with the sharing of information, and to highlight the resources available to us from the NHS and Social Services in the UK.
Links:
Information and Support:
- Comprehensive Information About HNPP
- The CMT-UK International Website - info About HNPP and Other resources
- The Neuropathy Trust - UK Information about Peripheral Neuropathy
- HMSN - HNPP info at NDC, Washington University, St. Louis, USA
- US National Library Of Medicine - Genetics Home Reference
- GeneClinic HNPP review (05)
- CMTNEWS Archives
- HNPP:Recent Studies - PubMed
- OMIM #162500: HNPP
Online Support Groups:
- An International Hnpp Yahoo Email Group
- Hnpp Uk yahoo Email group
- Charcot-Marie-Tooth Association US Forums
CMT and HNPP - Blogs
- JSOL - My HNPP Blog
- HNPP - Our Story
- Neuropathy1850 - Neuropathy Blog for PN including Hereditary Neuropathies
- Hereditary neuropathy & CMT Facebook Group - Membership Required
