HNPP and surgery
Important notice
Always tell your treating physician/surgeon that you have HNPP or that you might have HNPP. Give them contact details of specialists that know the disease.
During surgery you are not able to move by yourself.
The surgical team can take precautions to avoid palsies (padding, soft surface, moving arms and legs during surgery, avoid pressure on lips/...).
See below the letter to the surgical team.
Letter to the surgical team
The letter to the surgical team originates from the website hnpp.org and is now visible by consulting this link: https://web.archive.org/web/20210309182604/http://www.hnpp.org/ (click on the left side on 'Letter to Surgical team').
Below an image of the letter. You can always adapt this letter to your own situation.
Letter to the surgical team_original letter_hnpp-org.docxAnesthesia in surgery
Management of anesthesia for surgery in prone position for a patient with hereditary neuropathy with liability to pressure palsies. A case report and narrative literature review http://www.actaanaesthesiologica.be/assets/40/ActaAnaestBelg-72-145.pdf: Moerman, C.J. & Havenbergh, Tony & Houwe, Patrick & Casaer, Sari. (2022). Management of anesthesia for surgery in prone position for a patient with hereditary neuropathy with liability to pressure palsies. A case report and narrative literature review. Acta Anaesthesiologica Belgica. 72. 145-149. 10.56126/72.3.7.
Interesting article on how the surgical team searched how to reduce pressure during surgery.
Anesthetic considerations
Anesthetic Considerations of Hereditary Neuropathy With Liability to Pressure Palsies in an Obstetric Patient: A Case Report https://pubmed.ncbi.nlm.nih.gov/30985325/: Bolger AA, Stewart PA. Anesthetic Considerations of Hereditary Neuropathy With Liability to Pressure Palsies in an Obstetric Patient: A Case Report. A A Pract. 2019 Aug 15;13(4):126-129. doi: 10.1213/XAA.0000000000001010. PMID: 30985325.